Here's Lauren :)
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November 26, 2019
THANKS to all of you, our LMF weekend fundraiser total for 2019 is once again the highest year-to-date!!!
We raised over $45,000 in 2 days for foundations and institutions that are working to find a cure and better treatment options for CDKL5 Deficiency Disorder (CDD). Almost $10,000 more than last year.
This year we will donate $50,000 to support the IFCR and well as the ODC at the University of Pennsylvania. Our donation last year to the IFCR has helped to make the brand new Center of Excellence at CHOP a reality. The past 4 or 5 years in the CDD world have met expectations along the lines of clinical trials and research initiatives. The next 5 may be life changing for our community. We are grateful for your continued support, prayers and love. Together we are making a difference.
This is an exciting time for the CDD community. Robert, Lauren and I participated a conference sponsored by the International Foundation for CDKL5 Research (IFCR), in Washington DC. We spent a long day on Capitol Hill meeting with members of congress and their staffers to educate them on the needs of the CDD community. We also had the honor to contribute to a Patient Forum Drug Discovery (PFDD) panel meeting with the FDA. Caregivers shared their heart-felt personal stories with the FDA in order to communicate the need for improved medical treatments as well as other therapies such as protein replacement and gene therapy. For the first time, Robert, Lauren and I met many other families with children with CDD and that experience was amazing.
Additional thanks to our son Jack along with his fraternity brothers hosted a volleyball fundraiser “SigEp Spike” and raised close to $3,000. (The same amount we raised at the first LMF weekend 10 years ago). We truly appreciate all those who honor Lauren with their contributions.
Happy Thanksgiving,
Robert, Kate, Mary and Lauren
Mark your calendars for the 11th Annual LMF Weekend…..The dates are July 10 and 11, 2020.
Please forward this email to any guests you may have brought to the event and anyone who you think would be interested in our cause.
If they would like to be added to the distribution list, please let me know.
THANKS to all of you, our LMF weekend fundraiser total for 2019 is once again the highest year-to-date!!!
We raised over $45,000 in 2 days for foundations and institutions that are working to find a cure and better treatment options for CDKL5 Deficiency Disorder (CDD). Almost $10,000 more than last year.
This year we will donate $50,000 to support the IFCR and well as the ODC at the University of Pennsylvania. Our donation last year to the IFCR has helped to make the brand new Center of Excellence at CHOP a reality. The past 4 or 5 years in the CDD world have met expectations along the lines of clinical trials and research initiatives. The next 5 may be life changing for our community. We are grateful for your continued support, prayers and love. Together we are making a difference.
This is an exciting time for the CDD community. Robert, Lauren and I participated a conference sponsored by the International Foundation for CDKL5 Research (IFCR), in Washington DC. We spent a long day on Capitol Hill meeting with members of congress and their staffers to educate them on the needs of the CDD community. We also had the honor to contribute to a Patient Forum Drug Discovery (PFDD) panel meeting with the FDA. Caregivers shared their heart-felt personal stories with the FDA in order to communicate the need for improved medical treatments as well as other therapies such as protein replacement and gene therapy. For the first time, Robert, Lauren and I met many other families with children with CDD and that experience was amazing.
Additional thanks to our son Jack along with his fraternity brothers hosted a volleyball fundraiser “SigEp Spike” and raised close to $3,000. (The same amount we raised at the first LMF weekend 10 years ago). We truly appreciate all those who honor Lauren with their contributions.
Happy Thanksgiving,
Robert, Kate, Mary and Lauren
Mark your calendars for the 11th Annual LMF Weekend…..The dates are July 10 and 11, 2020.
Please forward this email to any guests you may have brought to the event and anyone who you think would be interested in our cause.
If they would like to be added to the distribution list, please let me know.
Mission Statement: LMF exists to fund research to find a cure and better medicine options for genetic disorders such as CDKL5 and Rett Syndrome. All monies raised will support institutions and organizations that assist individuals and their families stricken with genetic disorders.
The Foundation was formed in memory of Francis X. Thomas III.
501(c)3 non-profit
Mail tax deductible donations to:
LMF Foundation
526 Kimball Turn
Westfield, NJ 07090
or donate with PayPal or credit card
The Foundation was formed in memory of Francis X. Thomas III.
501(c)3 non-profit
Mail tax deductible donations to:
LMF Foundation
526 Kimball Turn
Westfield, NJ 07090
or donate with PayPal or credit card
If donating by PayPal, Please use the link above. If donating by credit card, please use the link below.
The PayPal Giving Link enables the entire donation to LMF.
The PayPal Giving Link enables the entire donation to LMF.
