Here's Lauren :)
********************************************************************
Mail tax deductible donations to:
LMF Foundation
526 Kimball Turn
Westfield, NJ 07090
or donate with PayPal or credit card
501(c)3 non-profit
Mail tax deductible donations to:
LMF Foundation
526 Kimball Turn
Westfield, NJ 07090
or donate with PayPal or credit card
501(c)3 non-profit
If donating by PayPal, Please click the green button below. If donating by credit card, please click the yellow button below.
The PayPal Giving Link gives the entire donation to LMF.
The PayPal Giving Link gives the entire donation to LMF.
2022 LMF Weekend Recap and Horseshoe Set Purchase Info:
2022 LMF was another tremendous success.
Thank you to all the donors and participants.
We are on our way to raising over $50,000 between the two events.
Mother Nature had her say during the (unlucky) 13th annual double ringer tournament.
We really appreciate all 64 teams showing up and playing through the rain.
We had fantastic tournament with an exciting final won with a ringer!!!
Some housekeeping notes and a thank you…..
Many of you have expressed interest in purchasing a set of rubber horseshoes.
The horseshoes this year were custom-made for our event through the generous efforts of our brother, Ed Monahan.
Due to the fact that we were unable to obtain our original horseshoes through the vendor (aka Amazon/Cannon Sports), Ed had a horseshoe mold created.
We truly appreciate the time, effort, and resources used over the winter to get this accomplished and now our horseshoe tournament can continue for years to come. Thanks Ed!
We have sets for sale at cost. A set of 4 horseshoes and 2 stakes is $120
So please let us know if you would like to purchase a set.
Lastly in CDKL5 news, as Robert mentioned, the FDA approved the FIRST drug specifically for CDKL5 Deficiency Disorder this year!!!
This incredible achievement was made possible through research dollars and hard work by many, including the IFCR (International Foundation for CDKL5 Research), the recipient of many of our donations.
Lauren participated in the clinical trial to help get the drug safely approved!
WE as a group are making a difference!!
Thanks and enjoy the rest of your summer
Kate, Robert, Mary and Lauren
2022 LMF was another tremendous success.
Thank you to all the donors and participants.
We are on our way to raising over $50,000 between the two events.
Mother Nature had her say during the (unlucky) 13th annual double ringer tournament.
We really appreciate all 64 teams showing up and playing through the rain.
We had fantastic tournament with an exciting final won with a ringer!!!
Some housekeeping notes and a thank you…..
Many of you have expressed interest in purchasing a set of rubber horseshoes.
The horseshoes this year were custom-made for our event through the generous efforts of our brother, Ed Monahan.
Due to the fact that we were unable to obtain our original horseshoes through the vendor (aka Amazon/Cannon Sports), Ed had a horseshoe mold created.
We truly appreciate the time, effort, and resources used over the winter to get this accomplished and now our horseshoe tournament can continue for years to come. Thanks Ed!
We have sets for sale at cost. A set of 4 horseshoes and 2 stakes is $120
So please let us know if you would like to purchase a set.
Lastly in CDKL5 news, as Robert mentioned, the FDA approved the FIRST drug specifically for CDKL5 Deficiency Disorder this year!!!
This incredible achievement was made possible through research dollars and hard work by many, including the IFCR (International Foundation for CDKL5 Research), the recipient of many of our donations.
Lauren participated in the clinical trial to help get the drug safely approved!
WE as a group are making a difference!!
Thanks and enjoy the rest of your summer
Kate, Robert, Mary and Lauren
Mission Statement: LMF exists to fund research to find a cure and better medicine options for genetic disorders such as CDKL5 and Rett Syndrome. All monies raised will support institutions and organizations that assist individuals and their families stricken with genetic disorders.
The Foundation was formed in memory of Francis X. Thomas III.
501(c)3 non-profit
The Foundation was formed in memory of Francis X. Thomas III.
501(c)3 non-profit
|
|
